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AMP22q

Member sinceJanuary 31, 2013
Twitter Username@amp22q_1
BiographyTo provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events.
URLhttp://t.co/vp5HBsqS
Hashtags1 hashtag created
Definitions1 hashtag defined

Definitions

created on January 30, 2013
To provide community support and spread awareness for 22q11.2 Deletion Syndrome through fundraising, support groups, and local events. To help educate other families recently diagnosed with 22q11.2 Deletion Syndrome. To work with our local Children?s hospitals in gaining research and opening clinics to better provide for children with 22q11.2 Deletion Syndrome.

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